This memoir struck me on so many levels—not just for its exquisite and textured writing but also for its powerful honesty and startling frankness. Ian Brown’s son Walker was born with an extremely rare genetic syndrome. To his parents, caregivers, and even his doctors, Walker is a mystery, unable to speak and truly communicate; his disease makes Walker and his needs, feelings and even his symptomatology a complete unknown. As investigative journalist, Ian turns his focus to the disease, traveling the world to meet with the few doctors and parents of children who know CFC (cardiofaciocutaneous), and becomes immersed in this community. He comes to find the value of every human life, and begins to accept the wonder and love of Walker just as he is.