In 1958, Riva Lehrer was born with spina bifida, and has since spent her life as a force to be reckoned with. Golem Girl is her frank, intimate, liberating memoir, spanning her childhood spent largely through a medical lens, her early adult life as a student, creative, and lover, and finally finding her place as a renowned visual artist and disability activist whose collaborative portraits reveal and celebrate people of all shapes and abilities, and whose work explores Disability Culture, gender, queerness, physical identity, and freedom of self. Enhanced with full-color artwork and personal photographs, this book is powerful and a joy to discover.
The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies "Golem Girl is luminous; a profound portrait of the artist as a young--and mature--woman; an unflinching social history of disability over the last six decades; and a hymn to life, love, family, and spirit."--David Mitchell, author of Cloud Atlas
What do we sacrifice in the pursuit of normalcy? And what becomes possible when we embrace monstrosity? Can we envision a world that sees impossible creatures?
In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to fix her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.
Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark--it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits--inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she's been told her whole life about her body, her sexuality, and other measures of normal.
Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl
is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. "Not your typical memoir about 'what it's like to be disabled in a non-disabled world' . . . Lehrer tells her stories about becoming the monster she was always meant to be: glorious, defiant, unbound, and voracious. Read it "--Alice Wong, founder and director, Disability Visibility Project